Speaking Up for People Living with ME in Cardiff
I recently spoke in the Senedd about the challenges faced by people living with Myalgic Encephalomyelitis (ME) in Cardiff and across Wales.
Over the years, many constituents have contacted me about ME. Again and again, I hear how difficult life can be with this condition, and how often people feel misunderstood or not taken seriously. ME is a very real and often debilitating illness, and yet too many people still struggle to get the recognition and support they need.
During the debate, I wanted to highlight not only the impact ME has on those living with it, but also on families and unpaid carers. Many carers give huge amounts of time and energy supporting loved ones, often with very little help. Constituents regularly tell me about problems accessing benefits, getting the right medication, and finding healthcare professionals with specialist knowledge of ME.
I also spoke about the ‘Missing Millions’ campaign, which many people will recognise from displays of empty shoes outside the Senedd. These shoes represent people with ME who are missing from everyday life – missing work, school, social events and family time because of how unwell they are.
I was really pleased to see members of ME Support in Glamorgan (MESiG) at the debate. I’ve attended their support meetings before, and I know how important their work is in bringing people together, sharing information, and making sure people with ME are heard. I also want to recognise the ongoing work of Action for ME, who continue to raise awareness and push for change at a national level.
Some of the stories I shared came directly from my own constituents. One person described living with constant pain, extreme exhaustion, breathlessness, and problems with balance and concentration. Another can only leave the house very rarely, relies on a wheelchair, and has still faced repeated difficulties accessing the benefits they are entitled to. These experiences are distressing, but sadly they are not unusual.
I also raised serious concerns about local healthcare provision. One constituent was recently told by Cardiff and Vale University Health Board that there are currently no ME services available in our area. I know this has been a long-standing issue, and it is something I will continue to challenge.
While I welcome the progress being made through the Welsh Government’s Adferiad programme, it’s clear that more needs to be done. People living with ME deserve to be listened to, believed, and supported with services that reflect the reality of their condition.
I will continue to stand up for people with ME in Cardiff and press for better understanding, care, and support for patients and their families.